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Recommended Books for Parents

Book Comments
The Parent's Guide to Children's Congenital Heart Defects : What They Are, How to Treat Them, How to Cope With Them
by Gerri Freid Kramer, Shari Maurer
"a wonderfully reassuring book for parents whose child has been diagnosed with a congenital heart defect (CHD). With the assistance of more than 30 medical experts, they clearly outline the most common scenarios parents are likely to face. An illustrated overview of 16 of the most common defects. Salted throughout each chapter are frank comments and helpful suggestions from parents who have "been there, done that." - Library Journal 
Heart Defects in Children : What Every Parent Should Know. By Cheryl J. Wild, Michael J. Neary Written with the parent in mind. Informative but not terribly detailed. Has diagrams which can be used when discussing the defect with medical folk. 
The Heart of a Mother
by Anna Marie Jaworski (Preface), Judy Norwood (Introduction)
An outstanding book written by a mother of a child with HLHS. 
The Heart of a Child : What Families Need to Know About Heart Disorders in Children
by Edward B. Clark, Carleen Clark, and Catherine A. Neill (Editors)
A Johns Hopkins Press Health Book. 
"..While the severity of heart problems in children is not minimized, the authors emphasize that most conditions are now treatable. " — Library Journal 
"Recommended for parents and health professionals . . . This book describes the latest developments in understanding and treating heart problems in children." — Early Intervention 
Congenital Heart Disease : A Deductive Approach to Its Diagnosis. By Burton W. Fink An excellent and readable medical book from UCLA. May be hard to find, but well worth having if you can find a copy. Short chapters with good illustrations. Try Alibris or ABE.
Your Child in the Hospital: A Practical Guide for Parents
by Nancy Keene, Rachel Prentice, Linda Lamb (Editor)
This is a practical book of tips and wisdom from veteran parents that will help make any hospital stay easier. Not specific to congenital heart disease.
Curious George Goes to the Hospital
by Hans Augusto Rey, Margaret Rey, Margret Rey
"While beginning readers are convinced that they are enjoying themselves with George, their supervising adults are equally sure that they are learning something. Both are absolutely right." -- Kirkus Reviews 
"Readers can learn all about the hospital as George goes in for an operation to remove a puzzle piece he has eaten. Written in collaboration with the Children's Hospital Medical Center of Boston." - Ingram. 
Not specific to congenital heart disease.
Cardiac Kids : A Book for Families Who Have a Child With Heart Disease
by Vicci Elder, Annie King (Illustrator)
This book is out of print, but is an excellent read that deals directly with many issues related to raising a child with congenital heart disease. Try Alibris or ABE.

 

 


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